When we were in L.A. we got Liz some morphine which helped a great deal with her pain. Liz has been sleeping fairly well, either sitting up against pillows or even lying down again, although her back usually hurts more afterward. She feels pain in her right shoulder, and her left wrist is getting sore from doing more of the weight shifting work. She has some pain in her abdomen where her liver and spleen are, and also lower below her navel.
It has been frustrating to see her begin to get more food down then not keep it down. She has had mixed results with milk products too. She gets tired of applesauce and strawberries after a few days. We tried chicken broth and then chicken noodle soup and again have mixed results. Some tastes just get old quickly. We do smoothies twice a day or so, changing the flavors, and Brad has bought lots of various drinks - gatorade, SoBe, Fuze and other juices - to tempt her.
Yesterday we did another shower and Liz weighed 100 pounds, back up from about 97 or 98 I think. (She kept very little down on Tues-Fri last week.) Her appetite is slowly returning but her stomach is still so touchy. She can't overdo it with cold or heat, or volume. Liz felt hungry enough to try apple cinnamon oatmeal, then a couple hours later we tried egg/bacon/cheese omelet. That was a bad idea and it all came back. She gets so discouraged when she gets sick. It hurts her back and abdomen every time too, causing more pain.
This morning (Thursday 25th) Liz had a tiny portion of Rice Krispies and milk, some apple juice (too strong) and then some smoothie about 1:30. We take it a little at a time. She has had some low fever (about 99 or 100 degrees) and some rash, an expected side effect from the study drugs.
Thanks for recent notes and short visits. Just remember she is now sensitive to light and sound as well. :) We appreciate your support through all this!
