Hurray! We got approval from the insurance company for SRS treatment, Tuesday morning. We opted to go on our scheduled trip anyway, as we were about to walk out the door.
We asked Dr Ribas at UCLA how long to be off of the study drugs before radiation this time. He said on Tuesday 4 days, then Wednesday he said Roche (drug company) says 7 days. (Grr.) The half life of the drug is two days but it takes longer to clear it from the body if you have taken it longer. They also say 7 days after radiation is when to restart the study drugs.
We drove back from CA with my sister, Val. (We hope to hear Val and Brent's daughter, Cambric, will have her baby any day now.) Liz slept some and read some. Val did most of the driving. We got lots of time to talk. :) We like how smooth and quiet her car is, and its great gas mileage. It was fun to see Afton, Stillman, and Brent there too. Matt drove us home from Provo Th. night. We were amazed at our very clean house - those angels dropped by again. :)
Friday we went to Huntsman early to meet with Dr. Anker, a young man (looks like Matt) who works with Dr. Shrieve, regarding SRS treatment. He took more pictures of Liz's skin since some were out of focus last time. We also found out the big X-ray machine there hasn't been working; a part was flown in from Germany and they hoped it would be running by Monday. We still have priority but it may not happen until Tues 5/18 or later, due to backlog. Then we went upstairs for an MRI - to plan the SRS procedure. Liz came back in tears; they couldn't get an IV in, so no MRI was done. She was likely dehydrated. (The same fellow who got her IV in one try last time did three tries without success.) We go back Monday (today) for another try. Liz has been drinking a lot of liquids.
On a positive note, we have a date for Liz and JD's wedding: Saturday, July 10th. We'll try for a reception the night before, so she won't be worn out with too much happening on one day. We look forward to a very busy 8 weeks of anticipating, planning and arranging. Liz and JD have worked on getting ready for the temple endowment before the wedding. We don't have a date for that yet. We bought a beautiful dress the previous Saturday, May 8th, in Provo. So many of you have already offered your help, and we promise when we get a minute to breathe we will figure out how to let you. :)
We saw Iron Man 2 on Saturday, and enjoyed it. (I had my earplugs in.) Liz spent a little time out and about and got sunburned lips and nose while trying to stay out of the sun. Little adjustments are necessary. We planted a few vegetables and flowers. Life goes on, and we make the best of it. Thanks for all of your support!
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