Sunday, June 20, 2010

Father's Day and Happy 26th Amy!

Well, it has been a rougher week. Liz has had some nausea and occasional vomiting, including Father's Day blueberry pancake. It could be just from the study drugs, or maybe from radiation on her lumbar spine area hitting her intestines on May 22. She takes Zofran.

On Wednesday 6/16 she was to have her infusion of Zometa, then her CT and MRI scans. None of those happened because she couldn't get an IV in. After eating breakfast she got sick, then tried to drink more. Still, she was too dehydrated for any of the 5 pokes by 4 people (over three hours) to work. She got pretty upset with all the tries. They poke a needle (or a plastic tube that is sharp like one) in where they think they can get a vein, then they push it around to try to thread it. That's the part she hates. She ends up with bruises and feels very anxious.

The end result is that we rescheduled her CT and MRI scans for Thursday the 24th, and we will do the Zometa the next day, then we see Dr. Grossmann.

We also have her going in tomorrow morning early (6am) for Dr Scaife to put in a power port. This will go under her skin, on her chest somewhere, and can be accessed for drawing blood or for giving her medications or contrast injections for scans. We both kind of wished we had done this a while ago. The nurses have been sensitive to Liz's wish that it won't show with her wedding dress in three weeks too. :)

We also postponed our trip to UCLA to see Dr. Ribas. I emailed him and asked if he preferred to have us come later with scans, or on time without them, and he wants to see them. We will fly June 28-29th now.

On another topic... we are happy to say wedding announcements were mailed (except those for whom we didn't have addresses yet). Let us know if yours doesn't arrive this week. Other planning is progressing too.
Oh, and we met with Dr. Meic (say "Mike") Schmidt, a neurosurgeon on Wednesday too. He said he would want Liz's skin to be very healthy before he would do any surgery, because it needs to be able to heal well. Liz has some rash where she had radiation, and he said lower levels of tissues would likely be somewhat damaged as well. He said she can use the back brace for longer trips but should strengthen her muscles doing normal activities as she can, which is encouraging.
This morning her heel slipped off a stair and she sat hard, which hurt, but she is fine. We helped her rest on the couch for a few hours after that.

We are grateful for our wonderful children! Phil, Amy and Libby have brightened up many days lately, and Matt comes up from Provo most weekends (to play games with Tommy and to see us). We look forward to having Rachel, Ben and Hyrum here soon! She sent some cute pictures in a nice Father's Day card, and we hope to skype today too. Tonight we have a good dinner planned to celebrate Amy, the daughter of our hearts. We love her!

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